Support for hemophilia and bleeding disorders
Optum Infusion Pharmacy provides nationwide therapy, support and resources for people affected by bleeding disorders.
Support for hemophilia and bleeding disorders
Hemophilia, von Willebrand disease and other bleeding disorders (like factor deficiencies and platelet disorders) are rare genetic conditions that cause the clotting process to take longer than normal.
We know that living with hemophilia or a bleeding disorder can be challenging. We're here for you.
With Optum® Infusion Pharmacy, you get 24/7 support, access to a specialized clinical care team, and clotting factor and home infusion supplies delivered on time. You can also get registered nurse-led infusion training for you and your loved ones.
Patient and clinical liaisons
Our approach to care is personal. You will be connected with a clinical care team made up of experts who provide treatment based on your unique needs and lifestyle. Your care team will include:
- Patient liaisons
Bleeding disorders are lifelong conditions. But they don't have to stop you from having a well-lived life.
At Optum Infusion Pharmacy, supporting our patients with bleeding disorders means doing more than just providing your infusion and clinical support. Our suite of resources and programs are designed to help you and your loved ones.
We provide infusion education that fosters independence, including:
- Planning tools for school, work or emergency needs
- Disease-specific programs and education
- Close connection with many bleeding disorder community organizations
- Translation services
Meet Caeleb, a patient with hemophilia
Caeleb's severe hemophilia ruled his life for many years. But when a new drug that could greatly improve his quality of life entered the market, Caeleb's care team made sure that he had access to it as quickly as possible.
[Jennifer] This job is personal to me because I have two boys with severe Hemophilia A.
I want my patients to have the level of care that I want for my boys. I treat Caeleb like he's my own son.
I want for him what I want for my boys, the very best. Best life, best care, best of everything.
[Cazandra] Hemophilia ruled his life for a very long time.
It does a number on you physically and emotionally, and not just for yourself because this disorder doesn't affect just one person, it affects the entire family.
You can empathize with the person, "Oh I'm sorry I understand you're struggling, "your son has this condition," but until you live with it 24 hours a day, seven days a week, you can't say those words and Jennifer can.
[Jennifer] You truly feel all alone a lot of times so to have someone there, to be there, to support you is huge.
[Cazandra] Without a Jennifer, it would be a lot more difficult.
Optum and Jennifer's team takes away a lot of the burden of what comes with managing hemophilia. That was a great job. Having people like this team behind us allows for us to have a normal life.
There you go buddy, good job.
Jennifer's part for understand and her passion for her family and her children, it comes out to the patients that cares for.
[Jennifer] Supporting hemophilia patients is dear to my heart so I'm glad to be there for Cassandra and Caeleb.
Explore our resources
Learn about the tools to support patients and their loved ones.
We provide easy access to some of the most popular tools, information and links.
- Hemophilia A
- Hemophilia B
- Von Willebrand disease
- Factor I (1) deficiency
- Factor II (2) deficiency
- Factor V (5) deficiency
- Factor VII (7) deficiency
- Factor X (10) deficiency
- Factor XI (11) deficiency (hemophilia C)
- Factor XII (12) deficiency
- Factor XIII (13) deficiency
- Bernard-Soulier syndrome (BSS)
- Glanzmann’s thrombasthenia (GT)
- Platelet storage pool disease (SPD)
Our specially trained nurses are available across the nation, making it easier for you to get the care you need, where you need it.
You and your providers can expect 24/7 support, supplies and comprehensive care.OR
We always look for ways to make sure you can access and afford your therapies. We accept all major insurance plans. This includes Medicare Part B, Part D, Medicaid and commercial insurance.
When you need copay help, patient care coordinators can search for open grants, foundations and manufacturer-supported programs.
We’ll find out if you qualify. Then, we'll connect you with their programs. We’ll also help you with the paperwork. Ask us and we'll be ready to help you start.OR
Optum Infusion Pharmacy is a leader in bleeding disorder education. Our courses, available year-round, offer one hour of virtual or in-person continuing education (CE) credits for registered nurses and certified case managers.
Our programs are presented by an expert in bleeding disorders: Nurse educator Sandy Puckett, RN, BSN, is a pediatric nurse with more than 30 years of experience. She has worked as a school nurse, adjunct professor at Oregon Health and Science University and nurse coordinator at a hemophilia treatment center. She has been with Optum since 2005.
Hemophilia and bleeding disorder CE courses:
- Navigating Bleeding Disorders in the School Setting
- Navigating Bleeding Disorders in the Clinical Setting
- Von Willebrand Disease
- Hemophilia and Inhibitors
- Rare Congenital Bleeding Disorders
- Understanding Glanzmann Thrombasthenia
To learn more about our continuing education program, contact your Optum Pharmacy representative.OR
Optum Infusion Pharmacy is a leader in bleeding disorder education. We offer free education to local school systems to help them understand the needs of students who have bleeding disorders.
Our presentation and resource binder includes information about:
- Hemophilia, von Willebrand disease, and rare bleeding disorders
- Physical education and bleeding disorders
- School accommodations
- First aid
Our program lead is nurse educator Sandy Puckett, RN, BSN. Sandy is a pediatric nurse with more than 30 years of experience. She has worked as a school nurse, adjunct professor at Oregon Health and Science University, and nurse coordinator at a hemophilia treatment center. She has been with Optum since 2005.
To learn more about our school resources, contact your Optum Pharmacy representative.OR